As a result of governmental actions (not responding adequately to the use of syringes in mass vaccinations), many people lost their lives or were suffered many years bad health conditions. And they were suffered also prejudice and discrimination and were anxiety for the future. Many of them were suffered from financial burden. Those sufferings are still continuing.
We don't want to the government such actions do again. We want everyone to know about these damage and want our experiences to be used to create a society without prejudice and discrimination.
We are doing activities such as, (1) commitment to the government and, (2) patient lectures, in order to make people know about our thoughts and sufferings and to eliminate prejudice and discrimination.
Here, we will introduce our activities.
Encouragement to the country
The national government promised in its "Basic Agreement" with the plaintiffs and defense teams of the national hepatitis B lawsuit that government would commit to public relations "hepatitis patients, including victims of infection, etc. not to be suffered from unjustified prejudice or discriminations. In order f to proceed these actions properly, we hold discussions with the Minister of Health, Labor and Welfare, the Ministry of Health, Labor and Welfare and the Ministry of Education, Culture, Sports, Science and Technology every year.
For example, in a regular discussion with the Minister of Health, Labor and Welfare in 2016, we received a response from the minister that the significance of learning the hepatitis B problem as a lesson is significant and will be considered positively. This is a big step.
Patient lectures are: "Those activities that patients and families with hepatitis B talk about their experiences and make people to know about hepatitis B disease and mistakes of past government actions, and by doing those, to eliminate prejudice and discrimination, and to avoid repeating the same mistakes. We think it is important that patients and bereaved family themselves tell their sufferings by their own voices.
Since 2014, we have conducted patient lectures at various universities, vocational schools, high schools and junior high schools.
The actual number of patient lectures is about 270 at educational institutions and the number of participants is about 30,000 (as of the end of March 2019).